Clinicopathological aspects of the neuropathy of neurogastrointestinal encephalomyopathy (MNGIE) in four patients including two with a Charcot-Marie-Tooth presentation

J Neurol. 2005 Jun;252(6):655-62. doi: 10.1007/s00415-005-0712-4. Epub 2005 Mar 7.

Abstract

We report on four patients with severe polyneuropathy associated with intestinal pseudoobstruction (MNGIE). Three patients presented characteristic supranuclear ophthalmoplegia, and hyperdense signals on T2 weighted cerebral MRI and dystrophic mitochondria in Schwann cells and in endothelial cells in nerve biopsy specimens. Two of these patients had a Charcot-Marie-Tooth (CMT) presentation. All three were heterozygous for a recessively transmitted double substitution in the TP gene: Glu286Lys/Glu289Ala, Asp156Gly/Leu177Pro and Glu289Ala/Gly387Asp. The fourth patient, who was the only patient of this series with an affected sib, had no oculomotor manifestations, nor T2 hyperdense signals on brain MRI, and no TP gene mutation and or morphological abnormalities of mitochondria on electron microscopic examination. He was the only patient of this series with an affected sib. The three patients with the full MNGIE syndrome died before the age of 30 years. Detailed results of nerve pathology show that severe axonal degeneration is associated with segmental abnormalities of the myelin sheath in this syndrome which appears genetically heterogeneous. Our findings suggest that only ophthalmoplegia and hyperdense signals on cerebral MRI are directly related to the mitochondriopathy.

Publication types

  • Case Reports
  • Comparative Study

MeSH terms

  • Adult
  • Biopsy / methods
  • Cerebellum / pathology
  • Charcot-Marie-Tooth Disease / complications
  • Charcot-Marie-Tooth Disease / genetics
  • Charcot-Marie-Tooth Disease / pathology*
  • DNA Mutational Analysis / methods
  • Female
  • Gastrointestinal Diseases / complications
  • Gastrointestinal Diseases / genetics
  • Gastrointestinal Diseases / pathology*
  • Humans
  • Magnetic Resonance Imaging / methods
  • Male
  • Microscopy, Electron, Transmission / methods
  • Mitochondrial Encephalomyopathies / complications
  • Mitochondrial Encephalomyopathies / genetics
  • Mitochondrial Encephalomyopathies / pathology*
  • Muscles / pathology
  • Mutation
  • Nerve Fibers, Myelinated / pathology
  • Nerve Fibers, Myelinated / ultrastructure
  • Neural Conduction / physiology
  • Retrospective Studies
  • Thymidine Phosphorylase / genetics
  • Thymidine Phosphorylase / metabolism

Substances

  • Thymidine Phosphorylase