Asymptomatic hyperCKemia in a case of Danon disease due to a missense mutation in Lamp-2 gene

Neuromuscul Disord. 2005 Jun;15(6):409-11. doi: 10.1016/j.nmd.2005.02.008. Epub 2005 Apr 19.

Abstract

Primary lysosome-associated membrane protein-2 (LAMP-2) deficiency is an X-linked disease, characterized by the clinical triad of cardiomyopathy, vacuolar myopathy and mental retardation, previously known as Danon disease. Mutations of lamp-2 gene have been reported so far in about 20 patients, one of whom was Italian. We describe a new Italian case with persistent hyperCKemia, exercise intolerance and hypertrophic cardiomyopathy but with no muscle weakness or mental impairment. Muscle biopsy revealed a vacuolar myopathy with mild glycogen storage, and immunohistochemical studies detected LAMP-2 deficiency. A new nucleotide substitution (T961C) on exon 8 of lamp-2 gene was identified as responsible for the protein deficiency. This is the first missense mutation so far described. LAMP-2 deficiency should be considered as a cause of recurrent hyperCKemia and hypertrophic cardiomyopathy.

Publication types

  • Case Reports

MeSH terms

  • Adult
  • Antigens, CD / genetics*
  • Biopsy
  • Cardiomyopathy, Hypertrophic / genetics*
  • Cardiomyopathy, Hypertrophic / pathology
  • Creatine Kinase / blood*
  • Humans
  • Intellectual Disability / genetics*
  • Intellectual Disability / pathology
  • Lysosomal Membrane Proteins
  • Male
  • Mutation, Missense*
  • Vacuoles / pathology

Substances

  • Antigens, CD
  • Lysosomal Membrane Proteins
  • Creatine Kinase