Patient and parent/guardian perspectives on the health care of adults with mental retardation

Ment Retard. 2006 Aug;44(4):239-48. doi: 10.1352/0047-6765(2006)44[239:PAGPOT]2.0.CO;2.

Abstract

Individuals with mental retardation and their parents/guardians have long been neglected in health care research. In this study we used a qualitative methodology to describe the experiences adults with mental retardation and their parents/guardians have with the delivery of primary care services. Semi-structured in-depth interviews were conducted with 12 adults who had mental retardation and 9 parents/guardians. The grounded theory approach was utilized to guide data collection and analysis. Findings suggest an overall positive experience with primary care services. Unique themes were identified that distinguished parent/guardian experiences from those of adults with mental retardation, who focused on immediate, concrete issues related to service delivery, whereas parents/ guardians focused on more peripheral or abstract issues related to the delivery of primary care.

MeSH terms

  • Adolescent
  • Adult
  • Attitude to Health*
  • Health Services Research
  • Humans
  • Intellectual Disability / therapy*
  • Interviews as Topic
  • Legal Guardians / psychology*
  • Middle Aged
  • Parents / psychology*
  • Patient Satisfaction
  • Persons with Mental Disabilities / psychology*
  • Primary Health Care / standards*