Meeting the governance challenges of next-generation biorepository research

Sci Transl Med. 2010 Jan 20;2(15):15cm3. doi: 10.1126/scitranslmed.3000361.

Abstract

Advances in clinical translational research have led to an explosion of interest in infrastructure development and data sharing facilitated by biorepositories of specimens and linked health information. These efforts are qualitatively different from the single-center sample collections that preceded them and pose substantial new ethics and regulatory challenges for investigators and institutions. New research governance approaches, which can address current and anticipated challenges, promote high-quality research, and provide a robust basis for ongoing research participation, are urgently required.

Publication types

  • Research Support, N.I.H., Extramural
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Anonymous Testing
  • Biological Specimen Banks / organization & administration*
  • Biomedical Research / organization & administration*
  • Humans
  • Translational Research, Biomedical / organization & administration
  • Translational Research, Biomedical / trends