Current status of implementation of self-administration training in various regions of Europe, Canada and the USA in the management of hereditary angioedema

Int Arch Allergy Immunol. 2013:161 Suppl 1:10-6. doi: 10.1159/000351233. Epub 2013 May 28.

Abstract

Results from a 16-question survey about self-administration of hereditary angioedema (HAE) therapy, administered in Europe, Canada and the USA, were used to guide discussion at an international HAE expert meeting. The aim was to capture information about current practice in self-administered HAE therapy in these countries, including self-administration training, the key benefits of switching to self-administration, the barriers to self-administration and trends in self-administration. Overall, switching to self-administration therapy is looked upon favourably from both patient and clinician perspectives by virtue of the potential improvement in quality of life arising from optimisation of therapy and early intervention. The recent changes to product licences allowing self-administration provide additional options for the management of HAE.

MeSH terms

  • Angioedemas, Hereditary / drug therapy*
  • Canada
  • Complement C1 Inhibitor Protein / administration & dosage*
  • Europe
  • Humans
  • Patient Education as Topic / methods*
  • Self Administration / methods*
  • Self Administration / standards
  • Surveys and Questionnaires
  • United States

Substances

  • Complement C1 Inhibitor Protein