Using online social media for recruitment of human immunodeficiency virus-positive participants: a cross-sectional survey

J Med Internet Res. 2014 May 1;16(5):e117. doi: 10.2196/jmir.3229.

Abstract

Background: There are many challenges in recruiting and engaging participants when conducting research, especially with HIV-positive individuals. Some of these challenges include geographical barriers, insufficient time and financial resources, and perceived HIV-related stigma.

Objective: This paper describes the methodology of a recruitment approach that capitalized on existing online social media venues and other Internet resources in an attempt to overcome some of these barriers to research recruitment and retention.

Methods: From May through August 2013, a campaign approach using a combination of online social media, non-financial incentives, and Web-based survey software was implemented to advertise, recruit, and retain participants, and collect data for a survey study with a limited budget.

Results: Approximately US $5,000 was spent with a research staff designated at 20% of full-time effort, yielding 2034 survey clicks, 1404 of which met the inclusion criteria and initiated the survey, for an average cost of US $3.56 per survey initiation. A total of 1221 individuals completed the survey, yielding 86.97% retention.

Conclusions: These data indicate that online recruitment is a feasible and efficient tool that can be further enhanced by sophisticated online data collection software and the addition of non-financial incentives.

Keywords: AIDS; Facebook; HIV; Internet research; Twitter; non-financial incentives; online data collection software; online social media; recruitment; survey retention.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Cross-Sectional Studies
  • Data Collection / economics
  • Data Collection / methods*
  • Female
  • HIV Seropositivity*
  • Humans
  • Male
  • Patient Selection*
  • Social Media*
  • Software