Opportunities for cystic fibrosis care teams to support treatment adherence

Kristin A Riekert; Michelle N Eakin; Andrew Bilderback; Alana K Ridge; Bruce C Marshall

doi:10.1016/j.jcf.2014.10.003

Opportunities for cystic fibrosis care teams to support treatment adherence

J Cyst Fibros. 2015 Jan;14(1):142-8. doi: 10.1016/j.jcf.2014.10.003. Epub 2014 Oct 24.

Authors

Kristin A Riekert¹, Michelle N Eakin², Andrew Bilderback³, Alana K Ridge⁴, Bruce C Marshall⁵

Affiliations

¹ Johns Hopkins Adherence Research Center, The Johns Hopkins University, 5501 Hopkins Bayview Circle, Baltimore, MD 21224, USA. Electronic address: kriekert@jhmi.edu.
² Johns Hopkins Adherence Research Center, The Johns Hopkins University, 5501 Hopkins Bayview Circle, Baltimore, MD 21224, USA. Electronic address: meakin1@jhmi.edu.
³ Johns Hopkins Adherence Research Center, The Johns Hopkins University, 5501 Hopkins Bayview Circle, Baltimore, MD 21224, USA. Electronic address: abilder1@jhmi.edu.
⁴ Johns Hopkins Adherence Research Center, The Johns Hopkins University, 5501 Hopkins Bayview Circle, Baltimore, MD 21224, USA. Electronic address: aridge@jhmi.edu.
⁵ Cystic Fibrosis Foundation, 6931 Arlington Road, Suite 200, Bethesda, MD 20814, USA. Electronic address: bmarshall@cff.org.

PMID: 25459564
DOI: 10.1016/j.jcf.2014.10.003

Abstract

Background: The purpose of this study was to identify the extent to which pediatric and adult cystic fibrosis (CF) care teams implement best practices in adherence assessment and counseling.

Methods: All US CF Foundation accredited programs were invited to participate in a web-based survey; 80% (92/115) of pediatric and 40% (38/95) of adult centers participated. Health care providers reported on current approaches and barriers to implementing adherence promotion practices.

Results: 64% discussed adherence at every clinic visit while only 8% used an objective assessment of adherence. Most centers reported frequent use of strategies to increase knowledge; behavioral and support strategies were used less regularly. Several barriers to adherence promotion were reported.

Conclusions: Many opportunities exist for care teams to improve consistency in adherence practices and integrate a greater repertoire of effective counseling strategies into clinic visits. Adherence promotion practices should be considered for quality improvement (QI) projects.

Keywords: Adherence; Barriers; Counseling; Education; Provider.

Publication types

Research Support, Non-U.S. Gov't

MeSH terms

Adult
Child
Counseling
Cystic Fibrosis / diagnosis
Cystic Fibrosis / psychology
Cystic Fibrosis / therapy*
Female
Health Care Surveys
Humans
Male
Nurse-Patient Relations
Patient Care Team / organization & administration*
Patient Compliance / statistics & numerical data*
Patient Education as Topic / organization & administration*
Physician-Patient Relations
Quality Improvement*
Severity of Illness Index
Treatment Outcome
United States