Consent Codes: Upholding Standard Data Use Conditions

Stephanie O M Dyke; Anthony A Philippakis; Jordi Rambla De Argila; Dina N Paltoo; Erin S Luetkemeier; Bartha M Knoppers; Anthony J Brookes; J Dylan Spalding; Mark Thompson; Marco Roos; Kym M Boycott; Michael Brudno; Matthew Hurles; Heidi L Rehm; Andreas Matern; Marc Fiume; Stephen T Sherry

doi:10.1371/journal.pgen.1005772

Consent Codes: Upholding Standard Data Use Conditions

PLoS Genet. 2016 Jan 21;12(1):e1005772. doi: 10.1371/journal.pgen.1005772. eCollection 2016 Jan.

Authors

Stephanie O M Dyke¹, Anthony A Philippakis², Jordi Rambla De Argila^{3

4}, Dina N Paltoo⁵, Erin S Luetkemeier⁵, Bartha M Knoppers¹, Anthony J Brookes⁶, J Dylan Spalding⁷, Mark Thompson⁸, Marco Roos⁸, Kym M Boycott⁹, Michael Brudno^{10

11}, Matthew Hurles¹², Heidi L Rehm^{2

13}, Andreas Matern¹⁴, Marc Fiume¹⁵, Stephen T Sherry¹⁶

Affiliations

¹ Centre of Genomics and Policy, Faculty of Medicine, McGill University, Montreal, Quebec, Canada.
² Broad Institute of MIT and Harvard, Cambridge, Massachusetts, United States of America.
³ Centre for Genomic Regulation (CRG), Barcelona, Spain.
⁴ Universitat Pompeu Fabra (UPF), Barcelona, Spain.
⁵ Office of Science Policy, Office of the Director, National Institutes of Health, Bethesda, Maryland, United States of America.
⁶ Department of Genetics, University of Leicester, Leicester, United Kingdom.
⁷ European Molecular Biology Laboratory-European Bioinformatics Institute (EMBL-EBI), Wellcome Trust Genome Campus, Hinxton, Cambridge, United Kingdom.
⁸ Human Genetics Department, Leiden University Medical Center, Leiden, The Netherlands.
⁹ Children's Hospital of Eastern Ontario Research Institute, University of Ottawa, Ottawa, Ontario, Canada.
¹⁰ Centre for Computational Medicine, Hospital for Sick Children, Toronto, Ontario, Canada.
¹¹ Department of Computer Science, University of Toronto, Toronto, Ontario, Canada.
¹² Wellcome Trust Sanger Institute, Wellcome Genome Campus, Hinxton, Cambridge, United Kingdom.
¹³ Department of Pathology, Brigham & Women's Hospital and Harvard Medical School, Boston, Massachusetts, United States of America.
¹⁴ Bioreference Laboratories, Inc., Elmwood Park, New Jersey, United States of America.
¹⁵ DNAstack, Toronto, Ontario, Canada.
¹⁶ National Centre for Biotechnology Information, US National Library of Medicine, Bethesda, Maryland, United States of America.

Abstract

A systematic way of recording data use conditions that are based on consent permissions as found in the datasets of the main public genome archives (NCBI dbGaP and EMBL-EBI/CRG EGA).

Consent Codes: Upholding Standard Data Use Conditions

Authors

Affiliations

Abstract

Publication types

MeSH terms

Grants and funding