[Characteristics and determinants of informal care in chronic diseases in Hungary: a comparative analysis]

Orv Hetil. 2017 Dec;158(52):2068-2078. doi: 10.1556/650.2017.30894.
[Article in Hungarian]

Abstract

Introduction: Informal care plays an important role in ageing societies.

Aim: To analyse informal care use and its determinants among patients with chronic diseases in Hungary.

Method: Patient level data from previous studies in 14 diagnoses were analysed including patients' EQ-5D-3L health status. Descriptive statistics were performed and a linear regression model was built to analyse determinants of informal care time.

Results: 2047 patients (female: 58%) with mean age of 58.9 (SD = 16.3) years and EQ-5D-3L index score of 0.64 (SD = 0.33) were involved. 27% received informal care, the average time of care was 7.54 (SD = 26.36) hours/week. Both the rate of informal care use and its time differed significantly between the diagnoses (p<0.05), the highest were in dementia, Parkinsons' disease and in chronic inflammatory immunological diseases. Significant determinants were age, EQ-5D-3L scores, gender and certain diagnosis dummys (R2 = 0.111).

Conclusions: Informal care use is significant in chronic debilitating conditions. Future studies are encouraged to reveal unmet needs, preferences and further explanatory factors. Orv Hetil. 2017; 158(52): 2068-2078.

Keywords: EQ-5D; chronic disease; egészségi állapot; health status; informal care; informális ellátás; krónikus betegség.

MeSH terms

  • Age Factors
  • Aged
  • Chronic Disease / nursing
  • Chronic Disease / therapy*
  • Female
  • Health Status*
  • Humans
  • Hungary
  • Male
  • Middle Aged
  • Patient Care / statistics & numerical data*
  • Quality of Life