The Burden in Caregivers of Multiple Myeloma Patients Undergoing Outpatient Autologous Stem-Cell Transplantation Compared to Inpatient Transplantation

Clin Lymphoma Myeloma Leuk. 2021 Apr;21(4):e402-e409. doi: 10.1016/j.clml.2020.11.011. Epub 2020 Nov 20.

Abstract

Background: The application of different models of autologous stem-cell transplantation (ASCT) in multiple myeloma has demonstrated the feasibility and safety of outpatient-based programs of care. Although several systematic reviews have evaluated the burden of caregivers, only a few studies have included outpatient ASCT.

Patients and methods: The feelings of lack of family support, daily activities, and general health were compared between caregivers of 2 groups of patients with multiple myeloma who underwent inpatient (n = 71) or outpatient (n = 25) ASCT.

Results: The 3 features did not significantly differ between the 2 study groups at baseline, before, and 3 months after ASCT. Multivariate modeling showed that the baseline values were significantly related to the changes in study outcomes independent of patient and caregiver characteristics. Other correlates were caregivers' work and patient age for impact on daily activities and disease burden across time for impact on general health (all P < .05).

Conclusion: The outpatient model neither improves nor impairs global caregivers' burden compared to standard ASCT care. Further research is needed to confirm this observation and to better assess the burden and quality of life of caregivers and their influence on patient outcomes and quality of life.

Keywords: ASCT; Caregivers; Inpatients; Multiple myeloma; Outpatients.

Publication types

  • Comparative Study
  • Observational Study

MeSH terms

  • Adult
  • Aged
  • Ambulatory Surgical Procedures / psychology*
  • Caregivers / psychology*
  • Female
  • Hematopoietic Stem Cell Transplantation / methods*
  • Hematopoietic Stem Cell Transplantation / psychology
  • Humans
  • Male
  • Middle Aged
  • Multiple Myeloma / psychology
  • Multiple Myeloma / surgery*
  • Quality of Life
  • Transplantation, Autologous / methods
  • Transplantation, Autologous / psychology
  • Young Adult