A Medical Report Feature for OSSE Rare Disease Registries

Stud Health Technol Inform. 2021 May 27:281:1085-1086. doi: 10.3233/SHTI210356.

Abstract

Web-based patient registries support clinicians by providing a way to effectively store and process data. Here, we present a new feature for the open-source registry software OSSE: medical reports generated with R Markdown. As part of a rare disease research project, we describe the process from requirements assessment to the current state of technical implementation. The feature offers clinicians the possibility to download customised as well as generic reports from an OSSE rare disease registry.

Keywords: Cystinosis; Medical report; OSSE registry; R Markdown; rare disease.

MeSH terms

  • Humans
  • Medical Records
  • Rare Diseases* / epidemiology
  • Registries
  • Software*