European Reference Network for rare adult solid cancers, statement and integration to health care systems of member states: a position paper of the ERN EURACAN

J-Y Blay; P Casali; C Bouvier; C Dehais; I Galloway; J Gietema; J Halámková; N Hindi; A Idbaih; E Kinloch; H-J Klümpen; T Kolarova; K Kopeckova; J Lovey; M Magalhaes; K Oselin; S Piperno-Neumann; A Ravnsbaek; M Rogasik; A Safwat; S Scheipl; M Seckl; J Taylor; M Temnyk; A Trama; M Urbonas; M Wartenberg; A Weinman; EURACAN Network

doi:10.1016/j.esmoop.2021.100174

European Reference Network for rare adult solid cancers, statement and integration to health care systems of member states: a position paper of the ERN EURACAN

ESMO Open. 2021 Aug;6(4):100174. doi: 10.1016/j.esmoop.2021.100174. Epub 2021 Jun 15.

Authors

J-Y Blay¹, P Casali², C Bouvier³, C Dehais⁴, I Galloway⁵, J Gietema⁶, J Halámková⁷, N Hindi⁸, A Idbaih⁴, E Kinloch⁹, H-J Klümpen¹⁰, T Kolarova¹¹, K Kopeckova¹², J Lovey¹³, M Magalhaes¹⁴, K Oselin¹⁵, S Piperno-Neumann¹⁶, A Ravnsbaek¹⁷, M Rogasik¹⁸, A Safwat¹⁷, S Scheipl¹⁹, M Seckl²⁰, J Taylor²¹, M Temnyk²², A Trama², M Urbonas²³, M Wartenberg²⁴, A Weinman²⁵; EURACAN Network

Affiliations

¹ Department of Medical Oncology, Centre Leon Berard & Centre de Recherche en Cancérologie de Lyon (CRCL) & Université Claude Bernard Lyon 1, Lyon, France. Electronic address: jean-yves.blay@lyon.unicancer.fr.
² Department of Medical Oncology, Fondazione IRCCS Istituto Nazionale dei Tumori and University of Milan, Milan, Italy.
³ Neuroendocrine Cancer Unit, Royal Free Hospital, London, UK.
⁴ Sorbonne Université, Inserm, CNRS, UMR S 1127, Institut du Cerveau, ICM, AP-HP, Hôpitaux Universitaires La Pitié Salpêtrière - Charles Foix, Service de Neurologie 2-Mazarin, Paris, France.
⁵ Melanoma Patient Network Europe, OcuMel, Birmingham, UK.
⁶ Department of Medical Oncology, University Medical Centre Groningen, Groningen, The Netherlands.
⁷ Department of Comprehensive Cancer Care, Masaryk Memorial Cancer Institute, Brno, Czech Republic.
⁸ Institute of Biomedicine of Sevilla (IBIS, HUVR, CSIC, Universidad de Sevilla), Virgen, Virgen del Rocío University Hospital, Seville, Spain.
⁹ Salivary Gland Cancer, London, UK.
¹⁰ Department of Medical Oncology, Amsterdam UMC, University of Amsterdam, Amsterdam, The Netherlands.
¹¹ International Neuroendocrine Cancer Alliance, Boston, USA.
¹² Department of Oncology, Second Faculty of Medicine, Charles University and Motol University Hospital, Prague, Czech Republic.
¹³ National Institute of Oncology, Budapest, Hungary.
¹⁴ Oncology Department, Centro Hospitalar e Universitário Universitário do Porto, Porto, Portugal.
¹⁵ Department of Chemotherapy, Clinic of Haematology and Oncology, North Estonia Medical Centre Foundation, Tallinn, Estonia.
¹⁶ Medical Oncology Department, Institut Curie, Paris, France.
¹⁷ Oncology Department, and Danish Centre for Particle Therapy, University Hospital, Aarhus, Denmark.
¹⁸ Research and Innovation Department, Centre Léon Bérard, Lyon, France.
¹⁹ Medical University of Graz, Graz, Austria.
²⁰ Department of Medical Oncology, Charing Cross Hospital Campus of Imperial College London, London, UK.
²¹ Thyroid Cancer Alliance, Rotterdam, The Netherlands.
²² Maria Skłodowska Curie Institute, Warsaw, Poland.
²³ Lithuanian University of Health Sciences, Department of Neurosurgery, Kaunas, Lithuania.
²⁴ Sarcoma Patient EuroNet.
²⁵ EURORDIS-Rare Diseases Europe (European Patient Organisation for Rare Diseases).

No abstract available

Publication types

News
Research Support, Non-U.S. Gov't

MeSH terms

Delivery of Health Care
Humans
Neoplasms* / therapy
Rare Diseases