Ethically robust reproductive genetic carrier screening needs to measure outcomes that matter to patients

Affiliations

• ¹ The University of Sydney, Faculty of Medicine and Health, Sydney School of Public Health, Sydney Health Ethics, Sydney, NSW, 2006, Australia. lisa.dive@uts.edu.au.
• ² Graduate School of Health, University of Technology Sydney, NSW, 2007, Broadway, Australia. lisa.dive@uts.edu.au.
• ³ The University of Sydney, Faculty of Medicine and Health, Sydney School of Public Health, Sydney Health Ethics, Sydney, NSW, 2006, Australia.