Transitions of Care in Cystic Fibrosis

Eunice M M DeFilippo; Jaideep S Talwalkar; Zachary M Harris; Jennifer Butcher; Samya Z Nasr

doi:10.1016/j.ccm.2022.06.016

Transitions of Care in Cystic Fibrosis

Clin Chest Med. 2022 Dec;43(4):757-771. doi: 10.1016/j.ccm.2022.06.016.

Authors

Eunice M M DeFilippo¹, Jaideep S Talwalkar², Zachary M Harris³, Jennifer Butcher⁴, Samya Z Nasr⁵

Affiliations

¹ Internal Medicine and Pediatrics, Yale School of Medicine, New Haven, CT, USA.
² Internal Medicine and Pediatrics, Yale School of Medicine, New Haven, CT, USA; Yale Adult Cystic Fibrosis Program, Section of Pulmonary, Critical Care, and Sleep Medicine, Yale School of Medicine, New Haven, CT, USA.
³ Yale Adult Cystic Fibrosis Program, Section of Pulmonary, Critical Care, and Sleep Medicine, Yale School of Medicine, New Haven, CT, USA.
⁴ Department of Pediatrics, Division of Pediatric Psychology, Mott Children's Hospital, University of Michigan Health, Ann Arbor, MI, USA.
⁵ Department of Pediatrics, Division of Pediatric Pulmonology, Mott Children's Hospital, University of Michigan Health, 1500 E. Medical Center Dr., Ann Arbor, MI 48109-5212, USA. Electronic address: snasr@umich.edu.

PMID: 36344079
DOI: 10.1016/j.ccm.2022.06.016

Abstract

The development of formal transition models emerged to reduce variability in care, including cystic fibrosis (CF) responsibility, independence, self-care, and education (RISE), which provides a standardized transition program, including knowledge assessments, self-management checklists, and milestones for people with CF. Despite these interventions, the current landscape of health care transition (HCT) remains suboptimal, and additional focused attention on HCT is necessary. Standardization of assessment tools to gauge the efficacy of transfer from pediatric to adult care is a high priority. Such tools should incorporate both clinical and patient-centered outcomes to provide a comprehensive picture of progress and deficiencies of the HCT process.

Keywords: Adolescents; CF rise; Cystic fibrosis; Health care transition; Quality improvement; Self-management; Transition readiness evaluation.

Publication types

Review

MeSH terms

Adult
Child
Cystic Fibrosis* / therapy
Humans
Self Care
Transition to Adult Care*