Decision making on HSCT in patients with hemoglobinopathies; an EBMT Pediatric Diseases Working Party and Inborn Errors Working Party scenario-based survey on physicians' perspectives
Bone Marrow Transplant. 2023 May;58(5):584-586.
doi: 10.1038/s41409-023-01926-4.
Epub 2023 Jan 26.
1 Willem-Alexander Children's Hospital, Department of Pediatrics, Leiden University Medical Center, Leiden, The Netherlands. h.mekelenkamp@lumc.nl.
2 Department of Medical Ethics and Health Law, Leiden University Medical Center, Leiden, The Netherlands. h.mekelenkamp@lumc.nl.
3 Willem-Alexander Children's Hospital, Department of Pediatrics, Leiden University Medical Center, Leiden, The Netherlands.
4 Department of Medical Ethics and Health Law, Leiden University Medical Center, Leiden, The Netherlands.
5 EBMT Leiden Study Unit, Leiden, The Netherlands.
6 Medical Decision Making, Department of Biomedical Data Sciences, Leiden University Medical Center, Leiden, The Netherlands.
7 Department of Pediatric Hematology, Oncology, and Stem Cell Transplantation, University of Regensburg, Regensburg, Germany.
8 Department of Pediatrics, Dr. von Hauner Children's Hospital, University Hospital, LMU, Munich, Germany.
9 Unité d'Immuno-hematologie et Rhumatologie Pédiatrique, Hôpital Necker-Enfants Malades, Assistance Publique Hopitaux de Paris, Université de Paris, Paris, France.