Building a Self-Management Toolkit for Patients with Pediatric Inflammatory Bowel Disease: Introducing the resilience 5

Sara Ahola Kohut; Laurie Keefer

doi:10.1016/j.gtc.2023.05.005

Building a Self-Management Toolkit for Patients with Pediatric Inflammatory Bowel Disease: Introducing the resilience 5

Gastroenterol Clin North Am. 2023 Sep;52(3):599-608. doi: 10.1016/j.gtc.2023.05.005. Epub 2023 Jun 20.

Authors

Sara Ahola Kohut¹, Laurie Keefer²

Affiliations

¹ Department of Gastroenterology, Hepatology, and Nutrition, Hospital for Sick Children, 555 University Avenue, Toronto, Onatrio, Canada. Electronic address: sara.aholakohut@sickkkids.ca.
² Icahn School of Medicine at Mount Sinai, 1 Gustave L. Levy Place, New York, NY, USA.

PMID: 37543403
DOI: 10.1016/j.gtc.2023.05.005

Abstract

Transition from pediatric to adult health care is a complex process that calls for complex interventions and collaboration between health care teams and families. However, many inflammatory bowel disease (IBD) clinical care teams do not have the resources to implement rigorous transition programs for youth. This review provides a description of the Resilience5: self-efficacy, disease acceptance, self-regulation, optimism, and social support. The Resilience5 represents teachable skills to support IBD self-management, offset disease interfering behaviors, and build resilience in adolescents and young adults transitioning to adult health care systems. These skills can also be encouraged and reinforced during routine IBD clinical care.

Keywords: Adolescent; IBD; Resilience; Self-management; Transition; Young adult.

Publication types

Review

MeSH terms

Adolescent
Child
Humans
Inflammatory Bowel Diseases* / therapy
Patient Care Team
Self-Management*
Young Adult