2 Department of Dermatology, Amsterdam UMC, Academic Medical Center, University of Amsterdam, Amsterdam Public Health, Infection and Immunity, the Netherlands.
3 Department of Genetics, Expertise Center for Blistering Diseases, University of Groningen, University Medical Centre Groningen, Groningen, the Netherlands.
4 Department of Dermatology, Medical Center, Faculty of Medicine, University of Freiburg, Freiburg, Germany.
5 EB House Austria (part of the Department of Dermatology and Allergology).
6 Dutch Medicines Evaluation Board, Utrecht, the Netherlands.
7 DEBRA Austria, Vienna, Austria.
8 Duchenne Parent Project, World Duchenne Organization, the Netherlands.
9 Research Program for Molecular Therapy of Genodermatoses (EB House Austria), University Hospital of the Paracelsus Medical University, Salzburg, Austria.