High-Stakes Treatment Negotiations Gone Awry: The Importance of Interactions for Understanding Treatment Advocacy and Patient Resistance

J Health Soc Behav. 2024 Jun;65(2):237-255. doi: 10.1177/00221465231204354. Epub 2023 Oct 31.

Abstract

Doctors (and sociologists) have a long history of struggling to understand why patients seek medical help yet resist treatment recommendations. Explanations for resistance have pointed to macrostructural changes, such as the rise of the engaged patient or decline of physician authority. Rather than assuming that concepts such as resistance, authority, or engagement are exogenous phenomena transmitted via conversational conduits, we examine how they are dynamically co-constituted interactionally. Using conversation analysis to analyze a videotaped interaction of an oncology patient resisting the treatment recommendation even though she might die without treatment, we show how sustained resistance manifests in and through her doctor's actions. This paradox, in which the doctor can both recommend life-prolonging care and condition resistance to it, has broad relevance beyond cancer treatment; it also can help us to understand other doctor-patient decisional conflicts, for instance, medication nonadherence, delaying emergent care, and vaccine refusal.

Keywords: conversation analysis; decision-making; doctor–patient interaction; doctor–patient relationship; oncology.

MeSH terms

  • Communication
  • Decision Making
  • Female
  • Humans
  • Middle Aged
  • Negotiating*
  • Neoplasms
  • Patient Advocacy
  • Physician-Patient Relations*
  • Treatment Refusal / psychology