Risk of Seizure Recurrence Due to Autoimmune Encephalitis With NMDAR, LGI1, CASPR2, and GABABR Antibodies: Implications for Return to Driving

Neurol Neuroimmunol Neuroinflamm. 2024 Jul;11(4):e200225. doi: 10.1212/NXI.0000000000200225. Epub 2024 Jun 4.

Abstract

Background and objectives: Patients with ongoing seizures are usually not allowed to drive. The prognosis for seizure freedom is favorable in patients with autoimmune encephalitis (AIE) with antibodies against NMDA receptor (NMDAR), leucine-rich glioma-inactivated 1 (LGI1), contactin-associated protein-like 2 (CASPR2), and the gamma-aminobutyric-acid B receptor (GABABR). We hypothesized that after a seizure-free period of 3 months, patients with AIE have a seizure recurrence risk of <20% during the subsequent 12 months. This would render them eligible for noncommercial driving according to driving regulations in several countries.

Methods: This retrospective multicenter cohort study analyzed follow-up data from patients aged 15 years or older with seizures resulting from NMDAR-, LGI1-, CASPR2-, or GABABR-AIE, who had been seizure-free for ≥3 months. We used Kaplan-Meier (KM) estimates for the seizure recurrence risk at 12 months for each antibody group and tested for the effects of potential covariates with regression models.

Results: We included 383 patients with NMDAR-, 440 with LGI1-, 114 with CASPR2-, and 44 with GABABR-AIE from 14 international centers. After being seizure-free for 3 months after an initial seizure period, we calculated the probability of remaining seizure-free for another 12 months (KM estimate) as 0.89 (95% confidence interval [CI] 0.85-0.92) for NMDAR, 0.84 (CI 0.80-0.88) for LGI1, 0.82 (CI 0.75-0.90) for CASPR2, and 0.76 (CI 0.62-0.93) for GABABR.

Discussion: Taking a <20% recurrence risk within 12 months as sufficient, patients with NMDAR-AIE and LGI1-AIE could be considered eligible for noncommercial driving after having been seizure-free for 3 months.

Publication types

  • Multicenter Study

MeSH terms

  • Adolescent
  • Adult
  • Aged
  • Autoantibodies* / blood
  • Cohort Studies
  • Encephalitis* / immunology
  • Female
  • Follow-Up Studies
  • Hashimoto Disease / blood
  • Hashimoto Disease / immunology
  • Humans
  • Intracellular Signaling Peptides and Proteins* / immunology
  • Male
  • Membrane Proteins* / immunology
  • Middle Aged
  • Nerve Tissue Proteins* / immunology
  • Proteins / immunology
  • Receptors, GABA-B* / immunology
  • Receptors, N-Methyl-D-Aspartate / immunology
  • Recurrence*
  • Retrospective Studies
  • Seizures / etiology
  • Seizures / immunology
  • Young Adult

Substances

  • LGI1 protein, human
  • Intracellular Signaling Peptides and Proteins
  • Autoantibodies
  • CNTNAP2 protein, human
  • Receptors, GABA-B
  • Nerve Tissue Proteins
  • Membrane Proteins
  • Receptors, N-Methyl-D-Aspartate
  • Proteins

Supplementary concepts

  • Hashimoto's encephalitis