Modernizing Newborn Screening in the Genomic Era: Importance of Health-Related Quality of Life

Affiliations

• ¹ Division of Child Health Research and Policy, Department of Population Medicine, Harvard Pilgrim Health Care Institute, Boston, MA, USA. ellen.kim@childrens.harvard.edu.
• ² Division of Child Health Research and Policy, Department of Population Medicine, Harvard Pilgrim Health Care Institute, Boston, MA, USA.
• ³ Boston Children's Hospital, Harvard Medical School, Boston, MA, USA.
• ⁴ Center for Bioethics, Harvard Medical School, Boston, MA, USA.