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Health-related quality of life in a systematically assessed cohort of children and adults with urea cycle disorders.
Murali CN, Barber JR, McCarter R, Zhang A, Gallant N, Simpson K, Dorrani N, Wilkening GN, Hays RD, Lichter-Konecki U; Members of the Urea Cycle Disorders Consortium; Burrage LC, Nagamani SCS. Murali CN, et al. Among authors: hays rd. Mol Genet Metab. 2023 Nov;140(3):107696. doi: 10.1016/j.ymgme.2023.107696. Epub 2023 Sep 8. Mol Genet Metab. 2023. PMID: 37690181 Free PMC article. Review.
A Perspective on the Measurement of Whole Person Health.
Herman PM, Rodriguez A, Edelen MO, DiGuiseppi G, Zeng C, Coulter ID, Hays RD. Herman PM, et al. Among authors: hays rd. Med Care. 2024 Dec 1;62(12 Suppl 1):S24-S26. doi: 10.1097/MLR.0000000000002047. Epub 2024 Nov 11. Med Care. 2024. PMID: 39514490 Free PMC article.
700 results