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Delayed diagnosis in duchenne muscular dystrophy: data from the Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet).
Ciafaloni E, Fox DJ, Pandya S, Westfield CP, Puzhankara S, Romitti PA, Mathews KD, Miller TM, Matthews DJ, Miller LA, Cunniff C, Druschel CM, Moxley RT. Ciafaloni E, et al. Among authors: westfield cp. J Pediatr. 2009 Sep;155(3):380-5. doi: 10.1016/j.jpeds.2009.02.007. Epub 2009 Apr 25. J Pediatr. 2009. PMID: 19394035 Free PMC article.
Respiratory Care Received by Individuals With Duchenne Muscular Dystrophy From 2000 to 2011.
Andrews JG, Soim A, Pandya S, Westfield CP, Ciafaloni E, Fox DJ, Birnkrant DJ, Cunniff CM, Sheehan DW; Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet). Andrews JG, et al. Among authors: westfield cp. Respir Care. 2016 Oct;61(10):1349-59. doi: 10.4187/respcare.04676. Epub 2016 Aug 9. Respir Care. 2016. PMID: 27507176 Free article.
Secondary Conditions Among Males With Duchenne or Becker Muscular Dystrophy.
Latimer R, Street N, Conway KC, James K, Cunniff C, Oleszek J, Fox D, Ciafaloni E, Westfield C, Paramsothy P; Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STAR net). Latimer R, et al. J Child Neurol. 2017 Jun;32(7):663-670. doi: 10.1177/0883073817701368. Epub 2017 Apr 9. J Child Neurol. 2017. PMID: 28393671 Free PMC article.
Implementation of Duchenne Muscular Dystrophy Care Considerations.
Andrews JG, Conway K, Westfield C, Trout C, Meaney FJ, Mathews K, Ciafaloni E, Cunniff C, Fox DJ, Matthews D, Pandya S. Andrews JG, et al. Pediatrics. 2018 Jul;142(1):e20174006. doi: 10.1542/peds.2017-4006. Epub 2018 Jun 20. Pediatrics. 2018. PMID: 29925575
Muscular Dystrophy Surveillance, Tracking, and Research Network pilot: Population-based surveillance of major muscular dystrophies at four U.S. sites, 2007-2011.
Do TN, Street N, Donnelly J, Adams MM, Cunniff C, Fox DJ, Weinert RO, Oleszek J, Romitti PA, Westfield CP, Bolen J; Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet). Do TN, et al. Among authors: westfield cp. Birth Defects Res. 2018 Nov 15;110(19):1404-1411. doi: 10.1002/bdr2.1371. Epub 2018 Aug 2. Birth Defects Res. 2018. PMID: 30070776 Free PMC article.
19 results