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Collaborative research protocol to define patient-reported experience measures of the cystic fibrosis care pathway in France: the ExPaParM study.
Pougheon Bertrand D, Fanchini A, Lombrail P, Rault G, Chansard A, Le Breton N, Frenod C, Milon F, Heymes-Royer C, Segretain D, Silber M, Therouanne S, Haesebaert J, Llerena C, Michel P, Reynaud Q. Pougheon Bertrand D, et al. Among authors: haesebaert j. Orphanet J Rare Dis. 2022 Feb 22;17(1):73. doi: 10.1186/s13023-022-02204-0. Orphanet J Rare Dis. 2022. PMID: 35193621 Free PMC article.
A conceptual framework to develop a patient-reported experience questionnaire on the cystic fibrosis journey in France: the ExPaParM collaborative study.
Pougheon Bertrand D, Fanchini A, Lombrail P, Rault G, Chansard A, Le Breton N, Frenod C, Milon F, Royer CH, Segretain D, Silber M, Therouanne S, Haesebaert J, Llerena C, Michel P, Reynaud Q. Pougheon Bertrand D, et al. Among authors: haesebaert j. Orphanet J Rare Dis. 2023 Feb 18;18(1):31. doi: 10.1186/s13023-023-02640-6. Orphanet J Rare Dis. 2023. PMID: 36805739 Free PMC article.
A Participatory Approach Involving Patients with Cystic Fibrosis and Healthcare Professionals for the Co-Design of an Adherence-Enhancing Intervention Toolkit.
Viprey M, Mougeot F, Dima AL, Haesebaert J, Occelli P, Durieu I, Rouzé H, Reynaud Q, Touzet S. Viprey M, et al. Among authors: haesebaert j. Patient Prefer Adherence. 2023 Apr 10;17:995-1004. doi: 10.2147/PPA.S389792. eCollection 2023. Patient Prefer Adherence. 2023. PMID: 37063606 Free PMC article.
114 results