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CEMARA an information system for rare diseases.
Landais P, Messiaen C, Rath A, Le Mignot L, Dufour E, Ben Said M, Jais JP, Toubiana L, Baujat G, Bourdon-Lanoy E, Gérard-Blanluet M, Bodemer C, Salomon R, Aymé S, Le Merrer M, Verloes A; CEMARA task force. Landais P, et al. Among authors: messiaen c. Stud Health Technol Inform. 2010;160(Pt 1):481-5. Stud Health Technol Inform. 2010. PMID: 20841733
CEMARA: a Web dynamic application within a N-tier architecture for rare diseases.
Messiaen C, Le Mignot L, Rath A, Richard JB, Dufour E, Ben Said M, Jais JP, Verloes A, Le Merrer M, Bodemer C, Baujat G, Gerard-Blanluet M, Bourdon-Lanoy E, Salomon R, Ayme S, Landais P. Messiaen C, et al. Stud Health Technol Inform. 2008;136:51-6. Stud Health Technol Inform. 2008. PMID: 18487707
A multicentre, randomised, double-blind, placebo-controlled trial with the interleukin-1 receptor antagonist anakinra in patients with systemic-onset juvenile idiopathic arthritis (ANAJIS trial).
Quartier P, Allantaz F, Cimaz R, Pillet P, Messiaen C, Bardin C, Bossuyt X, Boutten A, Bienvenu J, Duquesne A, Richer O, Chaussabel D, Mogenet A, Banchereau J, Treluyer JM, Landais P, Pascual V. Quartier P, et al. Among authors: messiaen c. Ann Rheum Dis. 2011 May;70(5):747-54. doi: 10.1136/ard.2010.134254. Epub 2010 Dec 20. Ann Rheum Dis. 2011. PMID: 21173013 Free PMC article. Clinical Trial.
Federating patients identities: the case of rare diseases.
Maaroufi M, Landais P, Messiaen C, Jaulent MC, Choquet R. Maaroufi M, et al. Among authors: messiaen c. Orphanet J Rare Dis. 2018 Nov 12;13(1):199. doi: 10.1186/s13023-018-0948-6. Orphanet J Rare Dis. 2018. PMID: 30419918 Free PMC article.
10 years of CEMARA database in the AnDDI-Rares network: a unique resource facilitating research and epidemiology in developmental disorders in France.
Messiaen C, Racine C, Khatim A, Soussand L, Odent S, Lacombe D, Manouvrier S, Edery P, Sigaudy S, Geneviève D, Thauvin-Robinet C, Pasquier L, Petit F, Rossi M, Willems M, Attié-Bitach T, Roux-Levy PH, Demougeot L, Slama LB, Landais P; AnDDI-Rares network; Jannot AS, Binquet C, Sandrin A, Verloes A, Faivre L. Messiaen C, et al. Orphanet J Rare Dis. 2021 Aug 4;16(1):345. doi: 10.1186/s13023-021-01957-4. Orphanet J Rare Dis. 2021. PMID: 34348744 Free PMC article.
18 results