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Developing a survey instrument to assess the readiness of primary care data, genetic and disease registries to conduct linked research: TRANSFoRm International Research Readiness (TIRRE) survey instrument.
Leppenwell E, de Lusignan S, Vicente MT, Michalakidis G, Krause P, Thompson S, McGilchrist M, Sullivan F, Desombre T, Taweel A, Delaney B. Leppenwell E, et al. Among authors: vicente mt. Inform Prim Care. 2012;20(3):207-16. doi: 10.14236/jhi.v20i3.26. Inform Prim Care. 2012. PMID: 23710845 Free article.
Key concepts to assess the readiness of data for international research: data quality, lineage and provenance, extraction and processing errors, traceability, and curation. Contribution of the IMIA Primary Health Care Informatics Working Group.
de Lusignan S, Liaw ST, Krause P, Curcin V, Vicente MT, Michalakidis G, Agreus L, Leysen P, Shaw N, Mendis K. de Lusignan S, et al. Among authors: vicente mt. Yearb Med Inform. 2011;6:112-20. Yearb Med Inform. 2011. PMID: 21938335 Review.
What are the barriers to conducting international research using routinely collected primary care data?
de Lusignan S, Pearce C, Shaw NT, Liaw ST, Michalakidis G, Vicente MT, Bainbridge M; International (IMIA); European (EFMI) Medical Informatics Association; Federation Primary Care Informatics Working Groups (PCI-WG). de Lusignan S, et al. Among authors: vicente mt. Stud Health Technol Inform. 2011;165:135-40. Stud Health Technol Inform. 2011. PMID: 21685599
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