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Retrospective access to data: the ENGAGE consent experience.
Tassé AM, Budin-Ljøsne I, Knoppers BM, Harris JR. Tassé AM, et al. Eur J Hum Genet. 2010 Jul;18(7):741-5. doi: 10.1038/ejhg.2010.30. Epub 2010 Mar 24. Eur J Hum Genet. 2010. PMID: 20332813 Free PMC article.
Bridging consent: from toll bridges to lift bridges?
Budin-Ljøsne I, Tassé AM, Knoppers BM, Harris JR. Budin-Ljøsne I, et al. BMC Med Genomics. 2011 Oct 4;4:69. doi: 10.1186/1755-8794-4-69. BMC Med Genomics. 2011. PMID: 21970509 Free PMC article.
Toward a roadmap in global biobanking for health.
Harris JR, Burton P, Knoppers BM, Lindpaintner K, Bledsoe M, Brookes AJ, Budin-Ljøsne I, Chisholm R, Cox D, Deschênes M, Fortier I, Hainaut P, Hewitt R, Kaye J, Litton JE, Metspalu A, Ollier B, Palmer LJ, Palotie A, Pasterk M, Perola M, Riegman PH, van Ommen GJ, Yuille M, Zatloukal K. Harris JR, et al. Eur J Hum Genet. 2012 Nov;20(11):1105-11. doi: 10.1038/ejhg.2012.96. Epub 2012 Jun 20. Eur J Hum Genet. 2012. PMID: 22713808 Free PMC article.
Genotype-driven recruitment: a strategy whose time has come?
Budin-Ljøsne I, Soye KJ, Tassé AM, Knoppers BM, Harris JR. Budin-Ljøsne I, et al. BMC Med Genomics. 2013 May 23;6:19. doi: 10.1186/1755-8794-6-19. BMC Med Genomics. 2013. PMID: 23702358 Free PMC article.
DataSHIELD: taking the analysis to the data, not the data to the analysis.
Gaye A, Marcon Y, Isaeva J, LaFlamme P, Turner A, Jones EM, Minion J, Boyd AW, Newby CJ, Nuotio ML, Wilson R, Butters O, Murtagh B, Demir I, Doiron D, Giepmans L, Wallace SE, Budin-Ljøsne I, Oliver Schmidt C, Boffetta P, Boniol M, Bota M, Carter KW, deKlerk N, Dibben C, Francis RW, Hiekkalinna T, Hveem K, Kvaløy K, Millar S, Perry IJ, Peters A, Phillips CM, Popham F, Raab G, Reischl E, Sheehan N, Waldenberger M, Perola M, van den Heuvel E, Macleod J, Knoppers BM, Stolk RP, Fortier I, Harris JR, Woffenbuttel BH, Murtagh MJ, Ferretti V, Burton PR. Gaye A, et al. Int J Epidemiol. 2014 Dec;43(6):1929-44. doi: 10.1093/ije/dyu188. Epub 2014 Sep 26. Int J Epidemiol. 2014. PMID: 25261970 Free PMC article.
35 results