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Publication of data collection forms from NHLBI funded sickle cell disease implementation consortium (SCDIC) registry.
Glassberg JA, Linton EA, Burson K, Hendershot T, Telfair J, Kanter J, Gordeuk VR, King AA, Melvin CL, Shah N, Hankins JS, Epié AY, Richardson LD; Sickle Cell Disease Implementation Consortium. Glassberg JA, et al. Orphanet J Rare Dis. 2020 Jul 7;15(1):178. doi: 10.1186/s13023-020-01457-x. Orphanet J Rare Dis. 2020. PMID: 32635939 Free PMC article.
Perspectives of individuals with sickle cell disease on barriers to care.
Phillips S, Chen Y, Masese R, Noisette L, Jordan K, Jacobs S, Hsu LL, Melvin CL, Treadwell M, Shah N, Tanabe P, Kanter J. Phillips S, et al. PLoS One. 2022 Mar 23;17(3):e0265342. doi: 10.1371/journal.pone.0265342. eCollection 2022. PLoS One. 2022. PMID: 35320302 Free PMC article.
The sickle cell disease implementation consortium: Translating evidence-based guidelines into practice for sickle cell disease.
DiMartino LD, Baumann AA, Hsu LL, Kanter J, Gordeuk VR, Glassberg J, Treadwell MJ, Melvin CL, Telfair J, Klesges LM, King A, Wun T, Shah N, Gibson RW, Hankins JS; Sickle Cell Disease Implementation Consortium. DiMartino LD, et al. Am J Hematol. 2018 Dec;93(12):E391-E395. doi: 10.1002/ajh.25282. Epub 2018 Oct 17. Am J Hematol. 2018. PMID: 30203558 Free PMC article. No abstract available.
Impact of the COVID-19 Pandemic on the Implementation of Mobile Health to Improve the Uptake of Hydroxyurea in Patients With Sickle Cell Disease: Mixed Methods Study.
Badawy SM, DiMartino L, Brambilla D, Klesges L, Baumann A, Burns E, DeMartino T, Jacobs S, Khan H, Nwosu C, Shah N, Hankins JS; Sickle Cell Disease Implementation Consortium. Badawy SM, et al. JMIR Form Res. 2022 Oct 14;6(10):e41415. doi: 10.2196/41415. JMIR Form Res. 2022. PMID: 36240004 Free PMC article.
Electronic Health Record-Embedded Individualized Pain Plans for Emergency Department Treatment of Vaso-occlusive Episodes in Adults With Sickle Cell Disease: Protocol for a Preimplementation and Postimplementation Study.
Luo L, King AA, Carroll Y, Baumann AA, Brambilla D, Carpenter CR, Colla J, Gibson RW, Gollan S, Hall G, Klesges L, Kutlar A, Lyon M, Melvin CL, Norell S, Mueller M, Potter MB, Richesson R, Richardson LD, Ryan G, Siewny L, Treadwell M, Zun L, Armstrong-Brown J, Cox L, Tanabe P. Luo L, et al. JMIR Res Protoc. 2021 Apr 16;10(4):e24818. doi: 10.2196/24818. JMIR Res Protoc. 2021. PMID: 33861209 Free PMC article.
168 results