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The EuRRECa Project as a Model for Data Access and Governance Policies for Rare Disease Registries That Collect Clinical Outcomes.
Ali SR, Bryce J, Tan LE, Hiort O, Pereira AM, van den Akker ELT, Appelman-Dijkstra NM, Bertherat J, Cools M, Dekkers OM, Kodra Y, Persani L, Smyth A, Smythe C, Taruscio D, Ahmed SF. Ali SR, et al. Among authors: kodra y. Int J Environ Res Public Health. 2020 Nov 25;17(23):8743. doi: 10.3390/ijerph17238743. Int J Environ Res Public Health. 2020. PMID: 33255540 Free PMC article. Review.
Classification and codification of rare diseases.
Kodra Y, Fantini B, Taruscio D. Kodra Y, et al. J Clin Epidemiol. 2012 Sep;65(9):1026-7. doi: 10.1016/j.jclinepi.2012.02.014. Epub 2012 Apr 20. J Clin Epidemiol. 2012. PMID: 22521575 No abstract available.
Current status of Italian Registries on inherited bleeding disorders.
Hassan HJ, Morfini M, Taruscio D, Abbonizio F, Giampaolo A, Kodra Y, Oliovecchio E, Vittozzi L. Hassan HJ, et al. Among authors: kodra y. Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):s576-81. doi: 10.2450/2014.0017-14s. Blood Transfus. 2014. PMID: 24922298 Free PMC article. No abstract available.
The Italian National Centre for Rare Diseases: where research and public health translate into action.
Taruscio D, Agresta L, Amato A, Bernardo G, Bernardo L, Braguti F, Carbone P, Carta C, Ceccarini M, Censi F, Coppola S, Crialese P, De Santis M, Diemoz S, Donati C, Gainotti S, Ferrari G, Floridia G, Frank C, Frazzica RG, Gentile AE, Granata O, Kodra Y, Latrofa M, Laricchiuta P, Magrelli A, Morciano C, Polizzi A, Razeto S, Salvatore M, Sanseverino A, Savini D, Torreri P, Tosto F, Villani F, Vincenti G, Vittozzi L. Taruscio D, et al. Among authors: kodra y. Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):s591-605. doi: 10.2450/2014.0040-14s. Blood Transfus. 2014. PMID: 24922300 Free PMC article. Review. No abstract available.
The Italian National Rare Diseases Registry.
Taruscio D, Kodra Y, Ferrari G, Vittozzi L; National Rare Diseases Registry Collaborating Group. Taruscio D, et al. Among authors: kodra y. Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):s606-13. doi: 10.2450/2014.0064-14s. Blood Transfus. 2014. PMID: 24922301 Free PMC article.
46 results