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"Extremely slow and capricious": A qualitative exploration of genetic researcher priorities in selecting shared data resources.
Trinidad MG, Ryan KA, Krenz CD, Roberts JS, McGuire AL, De Vries R, Zikmund-Fisher BJ, Kardia S, Marsh E, Forman J, Kent M, Wilborn D, Spector-Bagdady K. Trinidad MG, et al. Among authors: de vries r. Genet Med. 2023 Jan;25(1):115-124. doi: 10.1016/j.gim.2022.09.003. Epub 2022 Nov 13. Genet Med. 2023. PMID: 36371759 Free PMC article.
Social and behavioral research in genomic sequencing: approaches from the Clinical Sequencing Exploratory Research Consortium Outcomes and Measures Working Group.
Gray SW, Martins Y, Feuerman LZ, Bernhardt BA, Biesecker BB, Christensen KD, Joffe S, Rini C, Veenstra D, McGuire AL; CSER Consortium Outcomes and Measures Working Group. Gray SW, et al. Genet Med. 2014 Oct;16(10):727-35. doi: 10.1038/gim.2014.26. Epub 2014 Mar 13. Genet Med. 2014. PMID: 24625446 Free PMC article. Review.
Moral concerns and the willingness to donate to a research biobank.
Tomlinson T, De Vries R, Ryan K, Kim HM, Lehpamer N, Kim SY. Tomlinson T, et al. Among authors: de vries r. JAMA. 2015 Jan 27;313(4):417-9. doi: 10.1001/jama.2014.16363. JAMA. 2015. PMID: 25626040 Free PMC article. No abstract available.
1,742 results