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"Extremely slow and capricious": A qualitative exploration of genetic researcher priorities in selecting shared data resources.
Trinidad MG, Ryan KA, Krenz CD, Roberts JS, McGuire AL, De Vries R, Zikmund-Fisher BJ, Kardia S, Marsh E, Forman J, Kent M, Wilborn D, Spector-Bagdady K. Trinidad MG, et al. Among authors: mcguire al. Genet Med. 2023 Jan;25(1):115-124. doi: 10.1016/j.gim.2022.09.003. Epub 2022 Nov 13. Genet Med. 2023. PMID: 36371759 Free PMC article.
Social and behavioral research in genomic sequencing: approaches from the Clinical Sequencing Exploratory Research Consortium Outcomes and Measures Working Group.
Gray SW, Martins Y, Feuerman LZ, Bernhardt BA, Biesecker BB, Christensen KD, Joffe S, Rini C, Veenstra D, McGuire AL; CSER Consortium Outcomes and Measures Working Group. Gray SW, et al. Among authors: mcguire al. Genet Med. 2014 Oct;16(10):727-35. doi: 10.1038/gim.2014.26. Epub 2014 Mar 13. Genet Med. 2014. PMID: 24625446 Free PMC article. Review.
Standardizing return of participant results.
Botkin JR, Appelbaum PS, Bakken S, Brown C, Burke W, Fabsitz R, Gamble VN, Gonsalves G, Kost R, Leonard DGB, McGuire A, Nichols JH, Patrick-Lake B, Wilkins CH, Zikmund-Fisher BJ. Botkin JR, et al. Science. 2018 Nov 16;362(6416):759-760. doi: 10.1126/science.aav8095. Epub 2018 Nov 15. Science. 2018. PMID: 30442797 No abstract available.
Who Owns the Data in a Medical Information Commons?
McGuire AL, Roberts J, Aas S, Evans BJ. McGuire AL, et al. J Law Med Ethics. 2019 Mar;47(1):62-69. doi: 10.1177/1073110519840485. J Law Med Ethics. 2019. PMID: 30994077 Free PMC article.
Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for adult screening.
Smith HS, Rubanovich CK, Robinson JO, Levchenko AN, Classen SA, Malek J, Buchanan AH, Biesecker B, Brothers KB, Wilfond BS, Rini C, Bloss CS, McGuire AL, Knight SJ. Smith HS, et al. Among authors: mcguire al. Genet Med. 2024 Nov;26(11):101240. doi: 10.1016/j.gim.2024.101240. Epub 2024 Aug 10. Genet Med. 2024. PMID: 39140259
293 results