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Data sharing in neurodegenerative disease research: challenges and learnings from the innovative medicines initiative public-private partnership model.
Bradshaw A, Hughes N, Vallez-Garcia D, Chokoshvili D, Owens A, Hansen C, Emmert K, Maetzler W, Killin L, Barnes R, Brookes AJ, Visser PJ, Hofmann-Apitius M, Diaz C, Steukers L. Bradshaw A, et al. Among authors: hughes n. Front Neurol. 2023 Jul 20;14:1187095. doi: 10.3389/fneur.2023.1187095. eCollection 2023. Front Neurol. 2023. PMID: 37545729 Free PMC article. Review.
A concentric circles view of health data relations facilitates understanding of sociotechnical challenges for learning health systems and the role of federated data networks.
Milne R, Sheehan M, Barnes B, Kapper J, Lea N, N'Dow J, Singh G, Martín-Uranga A, Hughes N. Milne R, et al. Among authors: hughes n, n dow j. Front Big Data. 2022 Sep 16;5:945739. doi: 10.3389/fdata.2022.945739. eCollection 2022. Front Big Data. 2022. PMID: 36238653 Free PMC article.
Sharing sensitive data in life sciences: an overview of centralized and federated approaches.
Rujano MA, Boiten JW, Ohmann C, Canham S, Contrino S, David R, Ewbank J, Filippone C, Connellan C, Custers I, van Nuland R, Mayrhofer MT, Holub P, Álvarez EG, Bacry E, Hughes N, Freeberg MA, Schaffhauser B, Wagener H, Sánchez-Pla A, Bertolini G, Panagiotopoulou M. Rujano MA, et al. Among authors: hughes n. Brief Bioinform. 2024 May 23;25(4):bbae262. doi: 10.1093/bib/bbae262. Brief Bioinform. 2024. PMID: 38836701 Free PMC article. Review.
Public involvement in the governance of population-level biomedical research: unresolved questions and future directions.
Erikainen S, Friesen P, Rand L, Jongsma K, Dunn M, Sorbie A, McCoy M, Bell J, Burgess M, Chen H, Chico V, Cunningham-Burley S, Darbyshire J, Dawson R, Evans A, Fahy N, Finlay T, Frith L, Goldenberg A, Hinton L, Hoppe N, Hughes N, Koenig B, Lignou S, McGowan M, Parker M, Prainsack B, Shabani M, Staunton C, Thompson R, Varnai K, Vayena E, Williams O, Williamson M, Chan S, Sheehan M. Erikainen S, et al. Among authors: hughes n. J Med Ethics. 2020 Oct 6:medethics-2020-106530. doi: 10.1136/medethics-2020-106530. Online ahead of print. J Med Ethics. 2020. PMID: 33023977 Free article.
Opioid use, postoperative complications, and implant survival after unicompartmental versus total knee replacement: a population-based network study.
Burn E, Weaver J, Morales D, Prats-Uribe A, Delmestri A, Strauss VY, He Y, Robinson DE, Pinedo-Villanueva R, Kolovos S, Duarte-Salles T, Sproviero W, Yu D, Van Speybroeck M, Williams R, John LH, Hughes N, Sena AG, Costello R, Birlie B, Culliford D, O'Leary C, Morgan H, Burkard T, Prieto-Alhambra D, Ryan P. Burn E, et al. Among authors: hughes n. Lancet Rheumatol. 2019 Dec;1(4):e229-e236. doi: 10.1016/S2665-9913(19)30075-X. Epub 2019 Nov 7. Lancet Rheumatol. 2019. PMID: 38229379
Real world big data for clinical research and drug development.
Singh G, Schulthess D, Hughes N, Vannieuwenhuyse B, Kalra D. Singh G, et al. Among authors: hughes n. Drug Discov Today. 2018 Mar;23(3):652-660. doi: 10.1016/j.drudis.2017.12.002. Epub 2017 Dec 30. Drug Discov Today. 2018. PMID: 29294362 Free article. Review.
European Health Data Space-An Opportunity Now to Grasp the Future of Data-Driven Healthcare.
Horgan D, Hajduch M, Vrana M, Soderberg J, Hughes N, Omar MI, Lal JA, Kozaric M, Cascini F, Thaler V, Solà-Morales O, Romão M, Destrebecq F, Sky Gross E. Horgan D, et al. Among authors: hughes n. Healthcare (Basel). 2022 Aug 26;10(9):1629. doi: 10.3390/healthcare10091629. Healthcare (Basel). 2022. PMID: 36141241 Free PMC article.
537 results