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Development of MyREADY Transition BBD Mobile App, a Health Intervention Technology Platform, to Improve Care Transition for Youth With Brain-Based Disabilities: User-Centered Design Approach.
Marelli A, Rozenblum R, Bolster-Foucault C, Via-Dufresne Ley A, Maynard N, Amaria K, Galuppi B, Strohm S, Nguyen L, Dawe-McCord C, Putterman C, Kovacs AH, Gorter JW. Marelli A, et al. Among authors: dawe mccord c. JMIR Pediatr Parent. 2024 Oct 1;7:e51606. doi: 10.2196/51606. JMIR Pediatr Parent. 2024. PMID: 39352737 Free PMC article.
Navigating meaningful engagement: lessons from partnering with youth and families in brain-based disability research.
Nguyen L, Pozniak K, Strohm S, Havens J, Dawe-McCord C, Thomson D, Putterman C, Arafeh D, Galuppi B, Ley AV, Doucet S, Amaria K, Kovacs AH, Marelli A, Rozenblum R, Gorter JW; CHILD-BRIGHT READYorNot™ Brain-Based Disabilities Trial Study Group. Nguyen L, et al. Among authors: dawe mccord c. Res Involv Engagem. 2024 Feb 5;10(1):17. doi: 10.1186/s40900-024-00543-9. Res Involv Engagem. 2024. PMID: 38317213 Free PMC article.
A commentary on the healthcare transition policy landscape for youth with disabilities or chronic health conditions, the need for an inclusive and equitable approach, and recommendations for change in Canada.
Nguyen L, Dawe-McCord C, Frost M, Arafeh M, Chambers K, Arafeh D, Pozniak K, Thomson D, Mosel J, Cardoso R, Galuppi B, Strohm S, Via-Dufresne Ley A, Cassidy C, McCauley D, Doucet S, Alazem H, Fournier A, Marelli A, Gorter JW. Nguyen L, et al. Among authors: dawe mccord c. Front Rehabil Sci. 2023 Dec 14;4:1305084. doi: 10.3389/fresc.2023.1305084. eCollection 2023. Front Rehabil Sci. 2023. PMID: 38192636 Free PMC article.
CHILD-BRIGHT READYorNot Brain-Based Disabilities Trial: protocol of a randomised controlled trial (RCT) investigating the effectiveness of a patient-facing e-health intervention designed to enhance healthcare transition readiness in youth.
Gorter JW, Amaria K, Kovacs A, Rozenblum R, Thabane L, Galuppi B, Nguyen L, Strohm S, Mahlberg N, Via-Dufresne Ley A, Marelli A; CHILD-BRIGHT READYorNotTM Brain-Based Disabilities Trial Study Group; CHILD-BRIGHT READYorNot(TM) Brain-Based Disabilities Trial Study Group. Gorter JW, et al. BMJ Open. 2021 Mar 26;11(3):e048756. doi: 10.1136/bmjopen-2021-048756. BMJ Open. 2021. PMID: 33771833 Free PMC article.