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'Integrating Ethics and Equity with Economics and Effectiveness for newborn screening in the genomic age: A qualitative study protocol of stakeholder perspectives.
Kariyawasam DS, Scarfe J, Meagher C, Farrar MA, Bhattacharya K, Carter SM, Newson AJ, Otlowski M, Watson J, Millis N, Norris S. Kariyawasam DS, et al. Among authors: otlowski m. PLoS One. 2024 Mar 25;19(3):e0299336. doi: 10.1371/journal.pone.0299336. eCollection 2024. PLoS One. 2024. PMID: 38527031 Free PMC article.
Future implications of polygenic risk scores for life insurance underwriting.
Yanes T, Tiller J, Haining CM, Wallingford C, Otlowski M, Keogh L, McInerney-Leo A, Lacaze P. Yanes T, et al. Among authors: otlowski m. NPJ Genom Med. 2024 Mar 30;9(1):25. doi: 10.1038/s41525-024-00407-x. NPJ Genom Med. 2024. PMID: 38555372 Free PMC article. Review. No abstract available.
The Key Features of a Genetic Nondiscrimination Policy: A Delphi Consensus Statement.
Uberoi D, Dalpé G, Cheung K, Kondrup E, Palmour N, Arawi T, Arych M, Ramiro Aviles MA, Ayuso C, Bentzen HB, Blizinsky K, Bombard Y, Chandrasekharan S, Chung BHY, de Paor A, Doerr M, Dove ES, Dupras C, Granados-Moreno P, Greenbaum D, Gunnarsdóttir HD, Haidar H, Ho CH, Jamuar SS, Kim H, Lebret A, Macdonald A, Minssen T, Nasir J, Nicol D, Nicolás P, Otlowski M, Nair APS, Prince AER, Rothstein M, Ryan R, Sillon G, Singh KK, Stedman I, Tiller J, Van Hoyweghen I, Zawati MH, Joly Y. Uberoi D, et al. Among authors: otlowski m. JAMA Netw Open. 2024 Sep 3;7(9):e2435355. doi: 10.1001/jamanetworkopen.2024.35355. JAMA Netw Open. 2024. PMID: 39325459 Free article.
International scope of biomedical research ethics review.
Rothstein MA, Zimmerer KC, Andanda P, Arawi T, Arzuaga F, Chen H, de Vries M, Dove ES, Ghaly M, Hatanaka R, Hendriks AC, Hernández MC, Ho CWL, Joly Y, Krekora-Zając D, Lee WB, Mattsson T, Molnár-Gábor F, Namalwa K, Nicolás P, Nielsen J, Nnamuchi O, Otlowski M, Palmour N, Rial-Sebbag E, Siegal G, Wathuta JM, Zawati MH, Knoppers BM. Rothstein MA, et al. Among authors: otlowski m. Science. 2024 Jul 12;385(6705):145-147. doi: 10.1126/science.adp6277. Epub 2024 Jul 11. Science. 2024. PMID: 38991077
A proposal for an inclusive working definition of genetic discrimination to promote a more coherent debate.
Kaiser B, Uberoi D, Raven-Adams MC, Cheung K, Bruns A, Chandrasekharan S, Otlowski M, Prince AER, Tiller J, Ahmed A, Bombard Y, Dupras C, Moreno PG, Ryan R, Valderrama-Aguirre A, Joly Y. Kaiser B, et al. Among authors: otlowski m. Nat Genet. 2024 Jul;56(7):1339-1345. doi: 10.1038/s41588-024-01786-8. Epub 2024 Jun 24. Nat Genet. 2024. PMID: 38914718 Review.
"Uninsurable because of a genetic test": a qualitative study of consumer views about the use of genetic test results in Australian life insurance.
Muller C, Gallacher L, Keogh L, McInerney-Leo A, Boughtwood T, Gleeson P, Barlow-Stewart K, Delatycki MB, Winship I, Nowak KJ, Otlowski M, Lacaze P, Tiller J. Muller C, et al. Among authors: otlowski m. Eur J Hum Genet. 2024 Jul;32(7):827-836. doi: 10.1038/s41431-024-01602-1. Epub 2024 Apr 19. Eur J Hum Genet. 2024. PMID: 38637700 Free PMC article.
81 results