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[Integration of Inventory Data from Cohort and Registry Studies into an Existing Research Network: National Pandemic Cohort Network (NAPKON)].
Hofmann AL, Vehreschild JJ, Witzenrath M, Hoffmann W, Illig T, Schreiber S, Anton G, Hellmuth JC, Muenchhoff M, Scherer C, Pley C, Thibeault C, Kurth F, Berger S, Hummel M, Hopff SM, Stecher M, Appel K, Stahl D, Kraus M, Lorenz-Depiereux B, Hanß S, von Kielmansegg S, Schlünder I, Niemeyer A, Heuschmann P, Krawczak M, Reese JP. Hofmann AL, et al. Among authors: pley c. Gesundheitswesen. 2024 Oct;86(10):647-654. doi: 10.1055/a-2346-9680. Epub 2024 Aug 22. Gesundheitswesen. 2024. PMID: 39173676 Free PMC article. German.
Analysis of acute COVID-19 including chronic morbidity: protocol for the deep phenotyping National Pandemic Cohort Network in Germany (NAPKON-HAP).
Steinbeis F, Thibeault C, Steinbrecher S, Ahlgrimm Y, Haack IA, August D, Balzuweit B, Bellinghausen C, Berger S, Chaplinskaya-Sobol I, Cornely O, Doeblin P, Endres M, Fink C, Finke C, Frank S, Hanß S, Hartung T, Hellmuth JC, Herold S, Heuschmann P, Heyckendorf J, Heyder R, Hippenstiel S, Hoffmann W, Kelle SU, Knape P, Koehler P, Kretzler L, Leistner DM, Lienau J, Lorbeer R, Lorenz-Depiereux B, Lüttke CD, Mai K, Merle U, Meyer-Arndt LA, Miljukov O, Muenchhoff M, Müller-Plathe M, Neuhann J, Neuhauser H, Nieters A, Otte C, Pape D, Pinto RM, Pley C, Pudszuhn A, Reuken P, Rieg S, Ritter P, Rohde G, Rönnefarth M, Ruzicka M, Schaller J, Schmidt A, Schmidt S, Schwachmeyer V, Schwanitz G, Seeger W, Stahl D, Stobäus N, Stubbe HC, Suttorp N, Temmesfeld B, Thun S, Triller P, Trinkmann F, Vadasz I, Valentin H, Vehreschild M, von Kalle C, von Lilienfeld-Toal M, Weber J, Welte T, Wildberg C, Wizimirski R, Zvork S, Sander LE, Vehreschild J, Zoller T, Kurth F, Witzenrath M. Steinbeis F, et al. Among authors: pley c. Infection. 2024 Feb;52(1):93-104. doi: 10.1007/s15010-023-02057-0. Epub 2023 Jul 11. Infection. 2024. PMID: 37434025 Free PMC article.
Ethical and coordinative challenges in setting up a national cohort study during the COVID-19 pandemic in Germany.
Tilch K, Hopff SM, Appel K, Kraus M, Lorenz-Depiereux B, Pilgram L, Anton G, Berger S, Geisler R, Haas K, Illig T, Krefting D, Lorbeer R, Mitrov L, Muenchhoff M, Nauck M, Pley C, Reese JP, Rieg S, Scherer M, Stecher M, Stellbrink C, Valentin H, Winter C, Witzenrath M, Vehreschild JJ. Tilch K, et al. Among authors: pley c. BMC Med Ethics. 2023 Oct 17;24(1):84. doi: 10.1186/s12910-023-00959-0. BMC Med Ethics. 2023. PMID: 37848886 Free PMC article.
Statistical biases due to anonymization evaluated in an open clinical dataset from COVID-19 patients.
Koll CEM, Hopff SM, Meurers T, Lee CH, Kohls M, Stellbrink C, Thibeault C, Reinke L, Steinbrecher S, Schreiber S, Mitrov L, Frank S, Miljukov O, Erber J, Hellmuth JC, Reese JP, Steinbeis F, Bahmer T, Hagen M, Meybohm P, Hansch S, Vadász I, Krist L, Jiru-Hillmann S, Prasser F, Vehreschild JJ; NAPKON Study Group. Koll CEM, et al. Sci Data. 2022 Dec 21;9(1):776. doi: 10.1038/s41597-022-01669-9. Sci Data. 2022. PMID: 36543828 Free PMC article.
[The German Network of University Medicine: technical and organizational approaches for research data platforms].
Heyder R; NUM Coordination Office; NUKLEUS Study Group; NUM-RDP Coordination; RACOON Coordination; AKTIN Coordination; GenSurv Study Group. Heyder R, et al. Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2023 Feb;66(2):114-125. doi: 10.1007/s00103-022-03649-1. Epub 2023 Jan 23. Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2023. PMID: 36688978 Free PMC article. Review. German.
Persistent symptoms and risk factors predicting prolonged time to symptom-free after SARS‑CoV‑2 infection: an analysis of the baseline examination of the German COVIDOM/NAPKON-POP cohort.
Shi Y, Strobl R, Apfelbacher C, Bahmer T, Geisler R, Heuschmann P, Horn A, Hoven H, Keil T, Krawczak M, Krist L, Lemhöfer C, Lieb W, Lorenz-Depiereux B, Mikolajczyk R, Montellano FA, Reese JP, Schreiber S, Skoetz N, Störk S, Vehreschild JJ, Witzenrath M, Grill E; NAPKON Study Group. Shi Y, et al. Infection. 2023 Dec;51(6):1679-1694. doi: 10.1007/s15010-023-02043-6. Epub 2023 May 25. Infection. 2023. PMID: 37231313 Free PMC article.
A precise performance-based reimbursement model for the multi-centre NAPKON cohorts - development and evaluation.
Appel KS, Lee CH, Nunes de Miranda SM, Maier D, Reese JP, Anton G, Bahmer T, Ballhausen S, Balzuweit B, Bellinghausen C, Blumentritt A, Brechtel M, Chaplinskaya-Sobol I, Erber J, Fiedler K, Geisler R, Heyder R, Illig T, Kohls M, Kollek J, Krist L, Lorbeer R, Miljukov O, Mitrov L, Nürnberger C, Pape C, Pley C, Schäfer C, Schaller J, Schattschneider M, Scherer M, Schulze N, Stahl D, Stubbe HC, Tamminga T, Tebbe JJ, Vehreschild MJGT, Wiedmann S, Vehreschild JJ. Appel KS, et al. Among authors: pley c. Sci Rep. 2024 Jun 13;14(1):13607. doi: 10.1038/s41598-024-63945-5. Sci Rep. 2024. PMID: 38871878 Free PMC article.
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