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Common Data Elements for Unruptured Intracranial Aneurysms and Subarachnoid Hemorrhage Clinical Research: A National Institute for Neurological Disorders and Stroke and National Library of Medicine Project.
Suarez JI, Sheikh MK, Macdonald RL, Amin-Hanjani S, Brown RD Jr, de Oliveira Manoel AL, Derdeyn CP, Etminan N, Keller E, Leroux PD, Mayer SA, Morita A, Rinkel G, Rufennacht D, Stienen MN, Torner J, Vergouwen MDI, Wong GKC; Unruptured Intracranial Aneurysms and SAH CDE Project Investigators. Suarez JI, et al. Neurocrit Care. 2019 Jun;30(Suppl 1):4-19. doi: 10.1007/s12028-019-00723-6. Neurocrit Care. 2019. PMID: 31087257
A common data language for clinical research studies: the National Institute of Neurological Disorders and Stroke and American Academy for Cerebral Palsy and Developmental Medicine Cerebral Palsy Common Data Elements Version 1.0 recommendations.
Schiariti V, Fowler E, Brandenburg JE, Levey E, Mcintyre S, Sukal-Moulton T, Ramey SL, Rose J, Sienko S, Stashinko E, Vogtle L, Feldman RS, Koenig JI. Schiariti V, et al. Dev Med Child Neurol. 2018 Oct;60(10):976-986. doi: 10.1111/dmcn.13723. Epub 2018 Mar 15. Dev Med Child Neurol. 2018. PMID: 29542813 Free article. Review.
Prioritization and Timing of Outcomes and Endpoints After Aneurysmal Subarachnoid Hemorrhage in Clinical Trials and Observational Studies: Proposal of a Multidisciplinary Research Group.
Stienen MN, Visser-Meily JM, Schweizer TA, Hänggi D, Macdonald RL, Vergouwen MDI; Unruptured Intracranial Aneurysms and SAH CDE Project Investigators. Stienen MN, et al. Neurocrit Care. 2019 Jun;30(Suppl 1):102-113. doi: 10.1007/s12028-019-00737-0. Neurocrit Care. 2019. PMID: 31123994
Common Data Elements for Unruptured Intracranial Aneurysms and Aneurysmal Subarachnoid Hemorrhage: Recommendations from the Working Group on Hospital Course and Acute Therapies-Proposal of a Multidisciplinary Research Group.
de Oliveira Manoel AL, van der Jagt M, Amin-Hanjani S, Bambakidis NC, Brophy GM, Bulsara K, Claassen J, Connolly ES, Hoffer SA, Hoh BL, Holloway RG, Kelly AG, Mayer SA, Nakaji P, Rabinstein AA, Vajkoczy P, Vergouwen MDI, Woo H, Zipfel GJ, Suarez JI; Unruptured Aneurysms and SAH − CDE Project Investigators. de Oliveira Manoel AL, et al. Neurocrit Care. 2019 Jun;30(Suppl 1):36-45. doi: 10.1007/s12028-019-00726-3. Neurocrit Care. 2019. PMID: 31119687
Definition and Prioritization of Data Elements for Cohort Studies and Clinical Trials on Patients with Unruptured Intracranial Aneurysms: Proposal of a Multidisciplinary Research Group.
Hackenberg KAM, Algra A, Al-Shahi Salman R, Frösen J, Hasan D, Juvela S, Langer D, Meyers P, Morita A, Rinkel G, Etminan N; Unruptured Aneurysms and SAH CDE Project Investigators. Hackenberg KAM, et al. Neurocrit Care. 2019 Jun;30(Suppl 1):87-101. doi: 10.1007/s12028-019-00729-0. Neurocrit Care. 2019. PMID: 31102238
Common Data Elements for Radiological Imaging of Patients with Subarachnoid Hemorrhage: Proposal of a Multidisciplinary Research Group.
Hackenberg KAM, Etminan N, Wintermark M, Meyers PM, Lanzino G, Rüfenacht D, Krings T, Huston J 3rd, Rinkel G, Derdeyn C; Unruptured Intracranial Aneurysms and SAH CDE Project Investigators. Hackenberg KAM, et al. Neurocrit Care. 2019 Jun;30(Suppl 1):60-78. doi: 10.1007/s12028-019-00728-1. Neurocrit Care. 2019. PMID: 31115823
Common Data Element for Unruptured Intracranial Aneurysm and Subarachnoid Hemorrhage: Recommendations from Assessments and Clinical Examination Workgroup/Subcommittee.
Damani R, Mayer S, Dhar R, Martin RH, Nyquist P, Olson DM, Mejia-Mantilla JH, Muehlschlegel S, Jauch EC, Mocco J, Mutoh T, Suarez JI; Unruptured Intracranial Aneurysms and SAH CDE Project Investigators. Damani R, et al. Neurocrit Care. 2019 Jun;30(Suppl 1):28-35. doi: 10.1007/s12028-019-00736-1. Neurocrit Care. 2019. PMID: 31090013