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Family carer personal concerns in Huntington disease.
Williams JK, Skirton H, Barnette JJ, Paulsen JS. Williams JK, et al. J Adv Nurs. 2012 Jan;68(1):137-46. doi: 10.1111/j.1365-2648.2011.05727.x. Epub 2011 Jun 12. J Adv Nurs. 2012. PMID: 21668480 Free PMC article.
Development of the HD-Teen Inventory.
Driessnack M, Williams JK, Barnette JJ, Sparbel KJ, Paulsen JS. Driessnack M, et al. Clin Nurs Res. 2012 May;21(2):213-23. doi: 10.1177/1054773811409397. Epub 2011 Jun 1. Clin Nurs Res. 2012. PMID: 21632913 Free PMC article.
Strategies used by teens growing up in families with Huntington disease.
Williams JK, Driessnack M, Barnette JJ, Sparbel KJ, Leserman A, Thompson S, Paulsen JS. Williams JK, et al. J Pediatr Nurs. 2013 Sep-Oct;28(5):464-9. doi: 10.1016/j.pedn.2013.02.030. Epub 2013 Mar 24. J Pediatr Nurs. 2013. PMID: 23531469 Free PMC article.