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The Italian National Rare Diseases Registry.
Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):s606-13. doi: 10.2450/2014.0064-14s.
Blood Transfus. 2014.
PMID: 24922301
Free PMC article.
The Italian National Rare Diseases Registry: a model of comparison and integration with Hospital Discharge Data.
Kodra Y, Minelli G, Rocchetti A, Manno V, Carinci A, Conti S, Taruscio D; National Rare Diseases Registry Collaborating Group.
Kodra Y, et al.
J Public Health (Oxf). 2019 Mar 1;41(1):46-54. doi: 10.1093/pubmed/fdx176.
J Public Health (Oxf). 2019.
PMID: 29294017
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